• Factors Influencing Motivation and Engagement in Mobile Health Among Patients With Sickle Cell Disease in Low-Prevalence, High-Income Countries: Qualitative Exploration of Patient Requirements 

      Issom, David-Zacharie; Henriksen, André; Woldaregay, Ashenafi Zebene; Rochat, Jessica; Lovis, Christian; Hartvigsen, Gunnar (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-03-24)
      <i>Background</i>: Sickle cell disease (SCD) is a hematological genetic disease affecting over 25 million people worldwide. The main clinical manifestations of SCD, hemolytic anemia and vaso-occlusion, lead to chronic pain and organ damages. With recent advances in childhood care, high-income countries have seen SCD drift from a disease of early childhood mortality to a neglected chronic disease of ...
    • Preliminary Evaluation of a mHealth Coaching Conversational Artificial Intelligence for the Self-Care Management of People with Sickle-Cell Disease 

      Issom, David-Zacharie; Rochat, Jessica; Hartvigsen, Gunnar; Lovis, Christian (Journal article; Tidsskriftartikkel; Peer reviewed, 2020)
      Adherence to the complex set of recommended self-care practices among people with Sickle-Cell Disease (SCD) positively impacts health outcomes. However, few patients possess the required skills (i.e. disease-specific knowledge, adequate levels of self-efficacy). Consequently, adherence rates remain low and only 1% of patients are empowered enough to master the self-care practices. Health coaching ...
    • User Expectations and Willingness to Share Self-Collected Health Data 

      Woldaregay, Ashenafi Zebene; Henriksen, André; Issom, David-Zacharie; Pfuhl, Gerit; Sato, Keiichi; Richard, Aude; Lovis, Christian; Årsand, Eirik; Rochat, Jessica; Hartvigsen, Gunnar (Journal article; Tidsskriftartikkel; Peer reviewed, 2020)
      The rapid improvement in mobile health technologies revolutionized what and how people can self-record and manage data. This massive amount of information accumulated by these technologies has potentially many applications beyond personal need, i.e. for public health. A challenge with collecting this data is to motivate people to share this data for the benefit of all. The purpose of this study is ...
    • User Expectations and Willingness to Share Self-collected Health Data 

      Woldaregay, Ashenafi Zebene; Henriksen, André; Issom, David-Zacharie; Pfuhl, Gerit; Sato, Keiichi; Richard, Aude; Lovis, Christian; Årsand, Eirik; Rochat, Jessica; Hartvigsen, Gunnar (Journal article; Tidsskriftartikkel; Peer reviewed, 2020)
      The rapid improvement in mobile health technologies revolutionized what and how people can self-record and manage data. This massive amount of information accumulated by these technologies has potentially many applications beyond personal need, i.e. for public health. A challenge with collecting this data is to motivate people to share this data for the benefit of all. The purpose of this study is ...